|Tommy - Photo by
|Tommy's Wish Foundation, Inc.
|When God allows a burden to be put upon you, he will put
his arms underneath you to help carry it.
|St. Joseph Altar 2017 will be at Knights of Columbus Hall 465 Avenue B Westwego
Blessing will Saturday March 18 at 1:30 pm - Deacon Will Robicheaux
open Sunday March 19th 10AM - 7 PM.
Given for Baby Sawyer Forster & Dylan Gaubert
Welcome to Tommy's Wish Foundation.
It is what our son Tommy asked for, he survived a brain tumor.
How do you put down the first 15 years of Tommy's life with a brain tumor? You simply can't do it, it's too much
information. It was day to day living with it.
He had the tumor (ganglioglioma) from infancy and it was slow growing so therefore it was classified benign. For
many years it looked like a cyst on CT Scans and MRI's. It was considered inoperable for all those years, we even
got other opinions. But again only heads shook no, we're sorry. A few days before his 15th birthday he was very ill
and his brain had become swollen. An MRI showed the tumor had suddenly quadrupled in size from an MRI done
just several months earlier. His doctor could not believe what had happened after all the careful watching but we
were losing our child. An oncologist was called in and medication was given to bring the swelling down so surgery
could be done. His surgeon used a 3D imaging system that had came out to guide him to the tumor that was deep in
his brain. Technology had caught up with our waiting son and his slow growing tumor. We were truly blessed, Tommy
survived. The tumor can still return and he is still watched.
Brain tumors, like all tumors, fall into two broad categories, benign and malignant. A benign tumor is usually
contained and does not spread, but that doesn't mean it isn't dangerous. According to the Brain Tumor Society
(TBTS), brain tumors - even benign brain tumors - can recur and they can kill.
Tommy's tumor grew slowly all those years and then it viciously turned on him - WHY? We don't know. Just like we
didn't have answers for so many years. When he had surgery we couldn't even find information on this tumor. Now
we are beginning to find out more because research is finding out more on pediatric
brain tumors. Imagine fighting this battle with no information. That's what we were doing. His tumor was not even
diagnosed until after he had surgery.
Tommy's Wish is this: that other children should not suffer as he did throughout his childhood because of illness.
Tommy had to take so many steroids for asthma and the illnesses that he encountered that his veins were difficult to
find for routine blood work, which most of the time was every week. IV's for CAT Scans and MRI's required RN's
from the hospital. Our rule to them was get your best because you only get one stick. Tommy had bruises
everywhere because of the routine blood work. At the age of 8 he stopped breathing from a severe combination of
seizures and asthma. He spent several days in the PICU with tubes everywhere. We were in shock and still can't
believe how close our child came to dying.
Tommy is a survivor. He still suffers from the effects of the brain tumor to this day.
He is a wonder to many and a joy to be around.
Tommy's Wish is to raise money to help children who are ill. He also donates
for research to find out more about brain tumors. In the past Math A Thons for St. Jude Children's Research
Hospital were held.
Please join us for "Tommy's Wish"
God Bless You!!!
Tom & Sylvia Effler & "Tommy"
Founders of Tommy's Wish Foundation, Inc.
|Somewhere Over the Rainbow
Somewhere over the rainbow, way up high
There's a land that I heard of, once in a lullaby
Somewhere over the rainbow, skies are blue
And the dreams that you dare to dream
Really do come true
Someday I'll wish upon a star,
And wake up where the clouds are far behind me
Where troubles melt like lemon drops,
Away above the chimney tops
That's where you'll find me
Somewhere over the rainbow, bluebirds fly
Bird fly over the rainbow, why then, oh why can't I
If happy little bluebirds fly beyond the rainbow,
Why, oh why can't I?